MORGANTOWN, W.Va. – Jake Shuttleworth is working his way toward the top honor among the ranks of the Boy Scouts of America while also leaving a legacy for diabetes patients at WVU Medicine.
Shuttleworth, a 16-year-old junior at South Harrison High School, was diagnosed with Type I diabetes in November 2017. He’s still adjusting to the lifestyle changes that accompany the disease, but he turned a learning experience into a teaching moment. Shuttleworth raised money and assembled 250 kits for diabetes patients, which he recently donated – along with a check for $831 – to WVU Medicine’s Diabetes Education Center. The project is also part of Shuttleworth’s bid to become an Eagle Scout, the highest achievement of rank attainable in the Boy Scouts of America.
The kits, aimed at school-aged patients, contain medical supplies, such as alcohol wipes, gauze pads, and glucose tablets and gel; snacks, such as fruit snacks, juice boxes, and meat sticks; a note pad and pen to monitor sugar levels; a rubber bracelet; and a personal letter from Shuttleworth. The letter details Shuttleworth’s story and lets new patients know what to expect. On the back of the letter is an informational message for students to share with teachers who may not have experience with Type I diabetes patients.
“It’s absolutely awesome,” Justine Haney, a clinical dietitian who was Shuttleworth’s diabetes educator when he received care at J.W. Ruby Memorial Hospital, said. “We didn’t expect to get all of this. We are so appreciative.”
Haney said the kits will be distributed to school-aged Type I diabetes in- and outpatients. The money might be used to start a Type I support group, but it hasn’t been earmarked for anything specific yet.
Shuttleworth, a member of Troop 549 out of West Milford, said the most difficult part of the project was the fundraising.
“I wasn’t used to doing that much public speaking,” he said. “It took about six or seven months to raise all the money, and that was the hardest part.”
Originally, Shuttleworth wanted to assemble 500 kits with fewer items but thought fewer kits with more items would better serve the needs of patients. The project received an unexpected boost when a provider from Bridgeport contributed most of the medical supplies that were needed.
Haney said she hadn’t discussed the project with Shuttleworth when he was a patient. Shuttleworth said he was inspired by a similar project done by a Boy Scout in New Jersey, “but we thought we could expand on it a little bit,” he said. Along the way, he got guidance and help from his parents, Kellee, a school teacher, and Joe, the Bridgeport Parks and Recreation deputy director.
“They just came up with this on their own, and, again we are so appreciative,” Haney said.
In turn, the Shuttleworth family is appreciative of the medical care they received, particularly from WVU Medicine.
They arrived in Morgantown after a test showed that a primary marker for diabetic ketoacidosis, ketones, was through the roof. Jake Shuttleworth received additional blood work at United Hospital Center before being sent to J.W. Ruby Memorial Hospital.
“When we got to Ruby, we were devastated,” Kellee Shuttleworth said. “We were terrified about what this diagnosis meant for Jake’s life. From the moment we walked in the door, everyone was so kind and supportive. The care and compassion they showed our entire family made all the difference in the world to us.”
The Diabetes Education Center is a component of the specialized care WVU Medicine offers to diabetic patients. Since Type I diabetes is an auto-immune disease and not hereditary, most patients and families have little experience or knowledge of it.
“We would not have felt as comfortable with our ‘new normal’ had it not been for the amazing staff at Ruby,” she said.
Jake Shuttleworth is still adjusting to his ‘new normal,’ which includes nightly insulin shots – which he administers himself – and a constant vigil on the foods he eats.
“I’m not fully used to it but it’s getting easier over time,” he said. “I have to count the carbs in every meal I eat.”
WVU Medicine Children’s marks Familial Hypercholesterolemia Awareness Day to reduce premature heart disease
WVU Medicine Children’s is joining organizations across the world to increase awareness of familial hypercholesterolemia (FH) as part of FH Awareness Day on Sept. 24. FH is the most common cause of early heart attacks and premature coronary heart disease, impacting people of every race and ethnicity. More than 30 million people worldwide and 1.3 million in the Unites States have FH, and yet 90 percent remain undiagnosed.
The Marc Bulger Foundation, established by the former WVU and NFL quarterback for whom it is named, has donated $100,000 to the WVU Medicine Children’s Capital Campaign.
WVU Medicine announced today (Sept. 19) its plans to start West Virginia’s first heart transplant program at the WVU Heart and Vascular Institute.